Client2573
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Frustrated - 2009/07/21 05:16
I noticed an ugly mole on my partner Shanes back last May 2008 and made him an appointment with the Doc. The Doc removed it then called Shane back in the next day and took a very large cut out of his back explaining to us that he had melanoma but not to worry just make an appointment for a scan then we'll do another in 3 months.
After the first scan he said it was fine and so we just forgot about the scan in 3 months as it did not seem real important. You know just a melanoma on the back, cut it out, it will be right mate.
January this year Shane noticed a big lump above his groin and thought it was a hernia so back we went to find out it was a big crazy lump from the melanoma with some dots under his arm and a couple on his lungs. About 1 month or so later we went to the Mater where they cut the lump out in his groin with all surrounding lymphnodes and then they discovered a heap more under his arm so out they come to. The Doc was pretty happy because he had got all of it and put him in for this exciting new trail.
We were all excited till the next phone call telling us that the little shadows in his lungs were growing and he now has metastic cancer, (Now we are starting to panic because there is some big words and they knocked him back for the trial as well.
So off we go to another oncologist who tells us chemo doesnt help much but we have to try it before we find another trial OR he will be dead by Xmas. Mind you Shane is a 45 year old fit and healthy Carpenter and this is knowcking us for 6.
So he does 4 lots of chemo and now we are waiting to hear about some type of trial. I found one that sounds great in Melbourne called the BRAF trial and they even said Shane could be considered if the Oncologist called them.
I was all excited and forwarded the info to our Oncologist who wrote back and said " it is not in QLD"
and that was the answer. At this time I am really angry and there must be a way to find a good trial her in QLD or you know what anywhere in the world but I just dont know where to go anymore. Shane is still looking normal although the lumps on his lungs had grown a little more every 3 weeks when we attended the Doc which is not good and yes we are starting to panic. His oncologist said to me last Wednesday "I told you he only has till around Xmas so lets not get into a big panic" at which time I felt like screaming well at least give me something positive. we still have not heard anything and am waiting to see if he can find something better.
Any suggestions while we still have time???
Dam I really needed to get this off my chest, sorry all.
Kerren
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