Re:Frustrated - 2009/11/06 09:03Well Im back again. Shane has completed the needle part of the trial which was the Genvax trial. The Professor and his team at the PA have been excellent but at this time it does not look like it has worked. The lumps in his lungs are a bit bigger with more now showing under his arm again and now more down on the other side of his groin. I have been trying desparately to organise for Shane to be tested to see if he has Braf mutation but am running into brick walls at the moment, I think its no good getting excited till we at least know if he is positive. I have just finished writing to shanes local Doc to ask him to try contact the Peter Mac and see if he can organise it as they will not talk to the patient themselves only a Doc or oncologist. Does anyone know how you go about making this happen? Shane really wants to go to a hospital in Brisbane and I know that they are starting a Braf Phase 2 trial at the start of next year but they think that because he had Chemo last year he now wont be able to be included. Bugger. At this moment am just not sure where to go next and I have noticed that some-one is not coping as well as he would like to think. Has anyone out there actually tried one of these Braf trials or the GSK trial in Sydney, is there any feedback anywhere? Anyway wish us luck and I will keep trying to find something.
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